Working with researchers at University of Alabama at Birmingham. “There are a number of exciting, novel research projects under way at UAB,” said Candace Floyd, Ph.D., and Tara DeSilva, Ph.D., associate professors and directors of research in the Department of Physical Medicine and Rehabilitation. “Some involve controlling inflammation or a better understanding of the signalling pathways that contribute to inflammation. Others involve recovery or repair of the myelin sheath. The Mike L.…Continue
Added by michael jezdimir on March 31, 2013 at 10:59am — No Comments
Yesterday on my Facebook group...TM Folks, I had a new member join us....Betty Thomson.
Her husband has TM.
They have put together an organization called There is Always HOPE Events where they auction off various crafts that they and others make.
The money made from that goes towards helping various causes...various types of disabilities.
Betty has offered to donate one of their jeweled trees that they make, for me to use in a raffle with the International Disability…
Added by Kevin Weilacher on March 12, 2013 at 7:00am — No Comments
Just to let all of our members know....
If you go to this link....
and scroll down to the "Blue" ribbon.....Look at the first ribbon....
We got the Official Blue ribbon listed on there for Transverse Myelitis Awareness......
We can thank our website creator, Greg Sapp for getting this done.....
This kind of makes using the Blue…
Added by Kevin Weilacher on March 11, 2013 at 2:05pm — No Comments
I was diagnosed with TM in 2009, and spinal lesions were found early in 2012. I saw a new neurologist (we moved back to WV from KS) and he repeated some MRI's and other tets. He told me that he was concerned about compression of my spinal cord which showed up in the MRI and now wants me to see a neurosurgeon with the possibility of surgery to relieve the cord compression.
Has anyone had any experience with this? I am 60 and my neurologist has already said that he would not be doing…Continue
For anyone on here that is also on Facebook...I would like to invite all of you to my Facebook TM Folks group..
It is a very good group of people and the group is extremely active.....there is always a group of people online anytime...
Stop on over and check us out....
It's also a "closed" group meaning that we can chat about some of the more personal things regarding TM, and not worry about the rest of your Facebook friends reading about it...…
Added by Kevin Weilacher on February 12, 2013 at 1:45pm — No Comments
PLEASE ASAP/IMMEDIATELY, EVERYONE CALL 1-212-746-0313 (NURSES STATION ON 5 CENTRAL - NEW YORK PRESBYTERIAN-CORNELL HOSPITAL) AND TELL THEM THAT YOU WANT TO TALK TO RICARDO RIVERA IN ROOM 241A; YOU HAVE UNTIL 10 PM TO CALL. IF YOU CAN NOT REACH HIM TONIGHT, START CALLING TOMORROW MORNING AT 7 AM UNTIL 10 PM...TRY TO GET THROUGH TO RICKY. SHOW THIS HOSPITAL THAT THERE ARE PEOPLE THAT CARE ABOUT RICKY, AND YOU ARE DETERMINED TO TALK TO HIM, AND SEE IF HE IS OK. IT IS MY UNDERSTANDING HE…Continue
I thought of a name for the medical equipment needed.... How about Let's roll
Added by Diane Morgan Armstrong on January 9, 2013 at 11:56am — No Comments
I was diagnosed with TM in April 2012. I had been suffering for several years with ruptured Lumbar discs and getting a couple shots a year for the pain. Well, I had a particularly bad bout of pain in Feburary, so I had a shot first week of March, then my pain doctor recommended one 4 weeks later. I've never taken two in a row and I worried, but my pain had been so bad, I agreed. I went in March 30th and had the 2nd shot. I woke up at 6 am on March 31st with the most…Continue
Added by Kevin Weilacher on November 27, 2012 at 10:11am — No Comments
Added by Kevin Weilacher on November 27, 2012 at 10:07am — No Comments
Has anyone considered vaccines the cause of Transverse Myelitis (TM) ?
If you are on Facebook, join our group...TM Folks..
It's a great group, with lots of great people and the group is very active.
You would have a better chance of getting an immediate answer to a question...
I look forward to seeing some of you on there...
Added by Kevin Weilacher on October 22, 2012 at 10:34am — No Comments
I was recently discharged with a diagnosis of ADEM and CIDP. Is'nt CIDP the same as GBS ? I was dx with GBS three years ago and that dx changed to TM. Am I back to where I started ?
Added by Kimberlyn Thomas on October 3, 2012 at 2:43pm — No Comments
Hello! I am new to theTM board and am so happy to find it. I was diagnosed with TM and ADEM 15 years ago and have made a wonderful recovery. I am so very grateful and blessed. I do however have a couple of questions. After all this time I still have intermittant numbness and burning at times when I am stressed or before I get a cold or flu. The Dr.'s isolated the Herpes Simplex 1 virus from my CSF. This last cold I had very bad burning in my arms and legs and some on my face. The burning…Continue
Added by Lori on September 26, 2012 at 1:58pm — No Comments