"I had pelvic floor therapy and a 10 week treatment where they shoot electric impulses up my leg. That has helped my bladder a lot I only have to use a cathetor now once a day.
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Susan
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- Danvers, Mass.
- United States
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"Hi Lora, I was able to stand and walk all at once, but not well. I had no balance could only take small steps. I felt like a baby learning to walk all over again. I was lucky I was taken to Mass Gen Hosp and they figured out…"
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"Hi Donna,
You went thru quite a lot before the diagnosis. I got TM July of 08 so it's been a little over a year. I am lucky to be walking again. I find I do fall a lot and have injured my foot, my hip and broke my toe all this summer. I was…"
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Comment Wall (9 comments)
- At 9:31am on November 14, 2008,
Greg Sapp said… 
Welcome to the network! Here you will find a community of compassionate people who understand life with TM. Our goal is to build a team of members who share in the interest of learning more about this disorder. Through individual and group research we are providing the resources available to strengthening and improving daily life. I hope you find more than you intended to find on this network. Again, welcome and thank you for joining us.
God Bless,
Gregory Sapp
- At 10:24pm on November 14, 2008,
Kevin Weilacher said… - Hi Susan...I'm Kevin and one of the administrators here on the board.
We appreciate you joining our little network here..
We look forward to some good conversations and we are all here to help and support each other with this thing they call TM.
Thanks again.
Kevin
- At 10:53am on December 23, 2008, Greg Sapp said…
- At 11:10am on December 31, 2008, Greg Sapp said…
- At 3:51pm on February 1, 2009,
LORA said… - Sue, thank you for your encouraging words. i just had my six month date with TM. I'm encouraged you were walking by then. i just have movement in left leg while lying on right side. I am encouraged with even this. Did you get your walking back all at once or slowly? I know i lost it over six hours beginning with the horrible pain.
Blessings,
lora
- At 5:56pm on March 22, 2009, Greg Sapp said…
- Hello!
Thank you for being part of the Transverse Myelitis Network. Most of our advertisement is done through google with the use of blogs. When a person clicks on a blog, google lists the blog in their search engine. This attracts people to our site where they can get info on TM. Please take some time and goto: http://thetransversemyelitisnetwork.blogspot.com/ and click on as a follower of my blog so people can find our online community. Thank you for your time, and as always, thank you again for being part of our family. God bless you and your family.
Greg Sapp
http://thetransversemyelitisnetwork.blogspot.com/
- At 7:39pm on March 29, 2009, LORA said…
- Susan,
thank you for responding! When you say you got your walking back all at once i have so many questions.
1. how long were you without walking?
2. are you saying the same way you lost your walking the feeling and ability to walk or at least stand came back?
I am so so happy for you and I never give up hope!!!! I go to therapy twice a week and they put me in leg braces and have me stant between parallel bars and move my hips forward to walk. Secondly, my Vit D is very low and they have started my on Vit D 125mg twice per month. This is all Positive, I am so excited. I have always imagined my ability to stand would all come back at once. crossing my fingers. thank you!
- At 3:36pm on May 24, 2009, Greg Sapp said…
- At 4:45pm on December 20, 2009, Greg Sapp said…
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Started by Patricia Cole in Transverse Myelitis. Last reply by Kevin Weilacher May 1. 3 Replies 0 Likes
I just received the following in my personal email account. I feel as though my information was "stolen" from this website. I am a member of several other TM websites and have never had my info stolen or used in this way. I hope you can find some…Continue
Georgia Transverse Myelitis Awareness Walk & Roll Evet
Started by Pam Clark in Transverse Myelitis Mar 26. 0 Replies 0 Likes
April 27, 2013Douglassville, GAhttps://www.facebook.com/#!/pages/Transverse-Myelitis-Awareness-Georgia/392738644144021?fref=tsSpread the…Continue
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