Greg Sapp's TM page . . .

you are very welcome...but i am sorry for what had to happen to you, for this site to be created...i was diagnosed in feb. 2008...if you ever feel like talking, you can give me a call...704-675-8292...hope to hear from you...

scott

My story wow!! I was 11 years old when TM hit me I am now 63. I did not recover and have lived with a T2 complete lesion all those years. It is not an easy life but it is amazing how you adapt to it. I started driving at 16 and still do. I went to college and onto work for many years. I married and had my son. I have travelled to many countries and driven thousands of miles in my own. I say the only thing I haven’t done is walk.
Even though I have had 52 years of TM I would not offer any advice as we are all so completely different. Just to say forget what you can’t do and get on with what you can and enjoy!!

Hi, Greg, thanks for setting up this website. I am a 54 yo female, diagnosed May 13th of this year. It really hit me at the beginning of May when both my legs became completely numb at work one morning. Since then I have been seen by my neurologist, a hemotologist-oncologist & a surgeon (suspected thyroid cancer - thankfully I'm cancer free at this point after having my thyroid removed in August), 2 neurosurgeons for a suspected lesion in my spinal cord at the T1-2 level. The neurosurgeons I saw in August. Both were talking about back surgery because of the lesion indicated by MRI back in May. Thankfully the second neurosurgeon ordered a new thoracic and cervical MRI when I saw him in Nashville, TN in late August. The lesion that was there in May was gone in August! So now my neurologist, after reviewing the new MRI, feels that the original "lesion" was just inflammation in my spinal cord. In the meantime, I am taking Prednisone, which my neuro is starting to wean me off of, and Lyrica for neuropathy in both legs and feet. My back hurts almost constantly - my neuro thinks this is muscle spasm or my back muscles straining. Doesn't matter if I'm sitting or standing, it's always hurting and gets worse the longer I sit or stand. Can't win for losing! My meds have caused me to gain 40 pounds, are messing with my head, appetite and emotions, and I'm not improving at all. Before this horrible disease that no one has ever heard of hit me I worked full time in retail sales with people that were like family. Now I feel forgotten and alone, and I sorely miss the interaction at work. I hope to improve enough to go back to work at least part time, but I do not hold out much hope, not at this point. It's always good to find support from people who are in my shoes. Thanks for this medium. We appreciate you.

Hey Greg! thanks for the warm welcome, and even more thanks for setting this site up!! I'm sure I will visit often!

This site will be an inspiration to us all..Thanks for taking the time to
do this. It makes me feel that I am not alone in this .

Hi Greg,
I was denied I think everyone is the first time it really is pathetic. If you are make sure you keep the letter of denial and go call a lawyer. You have a Military background I doubt they will deny you but just make sure you have access to all your medical notes from docs! I did a lot of the running around to save on lawyer fees.
TC and thanks for adding me!
Denise

Thanks Greg, Great name you have there lol.

Hi Greg, thanks for the invite.

Trying not to tread on toes!
thanks