Non-Profit Organizations

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The Transverse Myelitis Association (TMA) was established in 1994 as an organization dedicated to advocacy for those who have Transverse Myelitis. It was incorporated as a not-for-profit organization in the State of Washington and obtained a 501(c)(3) status from the U.S. Internal Revenue Service in 1996.

In 2003 the TMA's mission was expanded to advocate for neuroimmunologic disorders of the central nervous system, which include: transverse myelitis; recurrent transverse myelitis; recurrent transverse myelitis and recurrent optic neuritis or Devics Disease; recurrent optic neuritis; and acute disseminating encephalomyelitis or ADEM.

The Transverse Myelitis Association facilitates support and networking opportunities amongst TM families; provides educational information; functions as a clearinghouse for articles and research literature about the TM diagnosis; and investigates, advocates for and supports research and innovative treatment efforts.

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HelpProjectRESTORE

Raising money for the research that will find the cure for Transverse Myelitis and Multiple Sclerosis, just two of several autoimmune disorders and diseases that affect 23.5 million people in America...

That's 14.5 million more than the 9 million Americans who have cancer and 7.5 million more than the 16 million with coronary disease. *

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The Myelin Repair Foundation (MRF) is a non-profit medical research foundation dedicated to accelerating basic medical research into myelin repair treatments that will dramatically improve the lives of people suffering from multiple sclerosis (MS).

Myelin Repair Foundation

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Mayo Clinic is a not-for-profit medical practice dedicated to the diagnosis and treatment of virtually every type of complex illness. Mayo Clinic staff members work together to meet your needs. You will see as many doctors, specialists and other health care professionals as needed to provide comprehensive diagnosis, understandable answers and effective treatment.

Mayo Clinic

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International Disability Coalitionis a non profit*, volunteer organization that helps disabled people. Our main focus is raising funds to further research into spinal cord injury, specifically Transverse Myelitis.

International Disability Coalition Website

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The Apparelyzed.comwebsite provides Patient Information about acute spinal cord injuries, as well as treatment, symptoms, information on long term rehabilitation issues and Peer Support, to help improve the quality of life of those affected by spinal cord injuries.

Apparelyzed.com Site

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MISSION STATEMENT: The Christopher and Dana Reeve Foundationis dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy. Go to the bottom of this page and order your own Paralysis Resource Guide...There is a lot of great information and a section on Transverse Myelitis.

The Christopher and Dana Reeve Foundation Site

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The Cody Unser First Step Foundationis a global not-for-profit organization dedicated to raising research funds, public awareness and quality of life for those afflicted with all forms of spinal cord-related paralysis. The Foundation will also address the cause, rehabilitation, prevention and cure for Transverse Myelitis, and freely affiliate with other medical, charitable and corporate entities to achieve these.

The Cody Unser First Step Foundation

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Founded in 1948, the National Spinal Cord Injury Associationis the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. This number grows by thirty newly-injured people each day.

National Spinal Cord Injury Association

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The mission of NINDSis to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.

National Institute of Neurological Disorders and Stroke
Transverse Myelitis Fact Sheet.

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The Myelin Projectwas established in 1989 with the aim of funding research to find a cure for demyelinating diseases, such as the leukodystrophies which are genetic and multiple sclerosis which is acquired. The organization was founded by Augusto Odone and his late wife, Michaela. Their son, Lorenzo, suffers from X-linked adrenoleukodystrophy (X-ALD), the most common of the leukodystrophies. The story of the Odones' struggle was dramatized in the film “Lorenzo's Oil”, starring Nick Nolte and Susan Sarandon, released by Universal Studios in 1992.

The Myelin Project

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The Brain and Spine Foundationwas set up in 1992 to develop research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine and to stimulate the greater allocation of resources across all neurological disorders.

Brain and Spine Foundation

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United Spinal Associationis a national 501(c)(3) nonprofit membership organization formed in 1946 by paralyzed veterans. Our mission is to improve the quality of life of Americans with spinal cord injuries and disorders (SCI/D). Membership is free and open to all individuals with spinal cord injuries and diseases. For more than sixty (60) years, we have committed our energy and our talents to improving the lives of individuals with a spinal cord injury or disease. Our initiatives, in promoting inclusion, improving access, fostering independence, enhancing mobility, and demanding equality, along with our commitment to member service, has helped to improve the quality of life and to create opportunities for our members and all people with spinal cord injuries or disorders.

United Spinal Association

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This is a website in England. The Spinal Injuries Association (SIA)is the leading national charity for spinal cord injured people. We are unique in that we are a user led organisation with all our Trustees being spinal cord injured themselves. One of our members here on the Transverse Myelitis Network runs a chat room for them on Wednesday nights.. Thanks Chris!!

The Spinal Injuries Association (UK)

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Myelin Repair Foundation's Institutional Innovation.
The Silicon Valley nonprofit fostered the development of a radical open-source platform for top-level health research
By, John Hagel and John Seely Brown

Innovation on the Edge

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NVLSP is an independent, nonprofit, veterans service organization dedicated to ensuring that the U.S. government honors its commitment to our veterans by providing them the federal benefits they have earned through their service to our country. NVLSP accomplishes its mission by:

• Providing veterans organizations, service officers and attorneys with training and educational publications to enable them to help veterans and their dependents obtain all of the benefits that they deserve.
  
  
• Representing veterans and their dependents who are seeking benefits before the U.S. Department of Veterans Affairs and in court.

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  Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. Our mission is "To create, demonstrate and encourage non-pathological and empowering resources and model early intervention services for families with disability issues in parent or child which integrate expertise derived from personal disability experience and disability culture."