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The mission of the Achilles Track Club is to enable people with all types of disabilities to participate in mainstream athletics, to promote personal achievement, enhanced self esteem, and the lowering of barriers between people.















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Rhana's Journey

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Where is everyone?

Posted by John Cary on February 7, 2016 at 1:43pm 1 Comment

Lost in TM

Posted by Jessica Keith on September 2, 2015 at 6:32pm 0 Comments


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Please take the time to read the following disclosure about this network:


The Ning platform has limited settings concerning member privacy. It is suggested that if you have any "personal Issues" that you wish to discuss, please do not post it on here. This information can be searched and found through Google or any of the other search engines, making your private issue public. If you have anything of personal nature, that you want to discuss privately, please join us at the Facebook Transverse Myelitis Folks group:

This is a "closed" group that only members can view. The postings are not searchable through any of the search engines. If you have any questions, please let me know.

The Transverse Myelitis Network is very proud that we can offer information about ADEM, NMO, ON and TM. The comments offered in this website are based on professional advice of members of the website, published case files and articles from various sources and opinions from experts in various medical fields, but do not represent any medical recommendations.For specific information and advice, consult a qualified physician. The Transverse Myelitis Network is not endorsing any medications, treatments, products, services or manufacturers. If any of such names appear in this group they are just based on information provided from members in this website. The Transverse Myelitis Network cannot and will not assume any liability for the contents or use of any medications, treatments, products or services mentioned by any member of this website.

~ Kevin, Head Admin


The Transverse Myelitis Network's mission is to continually work to be the best:

1. Gathering place for individuals with Transverse Myelitis and also their caregivers. To provide them a place to chat with others so as to offer support and comfort, as well as positive reinforcement.

2. Most extensive resource center with links and access to Medical Information, Support Groups, Academic Studies and much more.

3. Website to bring together it's members as a “family” by providing a place for them to post pictures of themselves and their families. We currently have over 1,400 pictures posted.

We are a “Family” and our membership is growing virtually every week.

Disability Discounts

This young lady, Rhana Fleming, has Transverse Myelitis which is the same neurological disease that we all have... Rhana is now 15 years old I believe and had her onset when she was 12. She was a very accomplished gymnast at the time and now is basically 24/7 in a chair. She has lost almost total use of the right side of her body..https://www.facebook.com/groups/RhanasJourney/ Since her onset, her father Robert Fleming has been a champion for not only Rhana but for the disabled in general after seeing some of the challenges that his daughter has endured. He recently just opened a website which is a site for discounts for those that are disabled. It is free to register on the site and all of the discounts available are offered to the disabled person and their caregiver, from the company or manufacturer. It is the company or manufacturer that is paying to advertise their service and coupon on the website...http://disabilitydiscount.com/  This is all completely and totally legit as I run a Transverse Myelitis support group on Facebook (https://www.facebook.com/groups/TMFolk) and have known Rhana and her dad since they first joined the group. If anyone has any questions you can PM me or Robert Fleming .. Thank you and help us support the site.....The more members he has on the site, the more companies will ultimately end up participating and offering thing.
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I Believe, Inc. (IB) is a nonprofit 501(c)(3) non-profit organization incorporated in the state of New Jersey. Our mission is to bring awareness to Spinal Cord Injury through collaborations with other organizations and assist people living with physical challenges improve their quality of life.


Latest Activity

Robin Reynolds is now a member of The Transverse Myelitis Network
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Mahesh jain is now a member of The Transverse Myelitis Network
Mar 13
Kevin Weilacher left a comment for John Cary
"Hi John,I see that you've created another profile here on the website......Did you forget your other log on...??Since you now have two profiles I can delete one of them if you'd like.....Just let me know which one...KevinHead Admin"
Feb 22
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Profile IconCathy Flaherty and Tina McEvoy joined The Transverse Myelitis Network
Feb 11
Kevin Weilacher commented on John Cary's blog post Where is everyone?
"Hi John,I've posted to you over on the TM Folks Facebook group.....I can guide you through it and also through this site too......"
Feb 8
John Cary posted a blog post

Where is everyone?

I joined a few days ago and am looking for others. The latest posts I can find are years old. Where is everyone? Or am I doing something wrong?I lost my left side Aug 20th, 2014 after returning from a 3 week camping, hiking outdoor adventure up the Blue Ridge Parkway from SC to VA. Two months of trying therapy, major surgery on my neck C3-C7, five months of rehab, 12 weeks out of work, a year of hell and finally coping with getting a wheelchair and some kind of life back.Really love to find a support group or blog that will help me thru the next phase of life. Doesn't look like any recover from here so it's living with the reality of TM.See More
Feb 7
Profile IconJohn Cary and sarah joined The Transverse Myelitis Network
Feb 4
Ann Gilbert is now a member of The Transverse Myelitis Network
Jan 25
Profile IconAlejandra and Bryce joined The Transverse Myelitis Network
Jan 21
Profile IconJen, Scott Reichert, K Hawkins and 1 more joined The Transverse Myelitis Network
Jan 10

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The mission of the Achilles Track Club is to enable people with all types of disabilities to participate in mainstream athletics, to promote personal achievement, enhanced self esteem, and the lowering of barriers between people.
















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Forum

Anyone tried Ampyra, 4 AP

Started by Sheri L Nielsen in Transverse Myelitis Mar 30, 2015. 0 Replies

I got TM on April 23rd 1975. When I was 16.  It has been 40 years. I was paralyzed below the chest down, except I could move my big toe on my right foot.  I left the hospital about 2 months later with 4arm crutches and a brace up to my hip on the…Continue

Tags: AP, 4, Ampyra

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