Here is part of my story.…
The Transverse Myelitis Network is a social network
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Vaccination
Posted by Kimberlyn Thomas on January 24, 2012 at 4:53am 0 Comments 1 Like
Why I'm here
Posted by Diane on January 19, 2012 at 8:55pm 1 Comment 0 Likes
Need Help
Posted by sarah margaret agnew on January 9, 2012 at 4:00am 1 Comment 0 Likes
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1. Gathering place for individuals with Transverse Myelitis and also their caregivers. To provide them a place to chat with others so as to offer support and comfort, as well as positive reinforcement.
2. Most extensive, resource center with links and access to Medical Information, Support Groups, Academic Studies and much more.
3. Website to bring together it's members as a “family” by providing a place for them to post pictures of themselves and their families. We currently have over 1,300 pictures posted.
We are a “Family” and our membership is growing virtually every week.
Who are they?
The International Disability Coalition is a non-profit, volunteer organization, that helps disabled people. Their main focus is raising funds to further research into spinal cord injury, specifically Transverse Myelitis. However, they also help disabled people and their families by teaming those people with volunteers, sponsors, donations of medical equipment and other services. It is their firm belief that there is strength in numbers. Working together, they believe we can change the lives of people with disabilities. Will join them? Your gift of money or service will not be wasted; it can make a tremendous difference to those families affected by disabilities. Your contribution will not only help support these goals today, but will also give us hope for the challenges of tomorrow. They need your help.
In 2004, Achilles launched the Freedom Team of Wounded Veterans program at Walter Reed Army Medical Center. An extension of the Achilles process of physical strengthening, building confidence, and generating a supportive community, the program was adapted to the specific needs of wounded U.S. soldiers. Program participants receive training as well as use of specialized adaptive devices, such as hand-crank wheelchairs. While the goal is to enter and complete a marathon, the program stresses “achievable accomplishment,” encouraging participants to begin by training for a less-demanding competition, such as our 5-mile “Hope and Possibility” race. This allows the soldiers to experience success and build confidence. Since it’s inception, we have expanded the program to two additional hospitals: Balboa Naval Hospital in San Diego, CA; and Brooke Army Medical Center in San Antonio, TX. All injured military personnel and veterans are eligible for the program, whether the injury is combat or non-combat related.
Latest Activity
michael jezdimir updated their profile
Vaccination
On October 23, 2009 my life completely changed, I suffered from an adverse vaccine reaction x2. I was admitted to Johns Hopkins Hospital and later discharged without any type of treatment. I know.....it's hard to believe, but true. I have continued with paralysis, severe bilateral foot drop, and weakness. I have continued Physical Therapy and I have also received Botox injections. This has been the most difficult journey of my life.See More
Blog post by Kimberlyn Thomas
Health South
HealthSouth is the nation’s largest provider of rehabilitation healthcare. The network includes rehabilitation hospitals, long-term acute care hospitals, outpatient satellite clinics and home health agencies.
Kimberlyn Thomas joined M.D. Jesus's group
Kevin Weilacher replied to J. D.'s discussion 'Questions about Recent Diagnosis: Your Expertise Please!'
I have approved your request to join....Welcome to the group and I hope you enjoy it.....If you ever have any questions, let me know...Kevin
J. D. replied to J. D.'s discussion 'Questions about Recent Diagnosis: Your Expertise Please!'
Dear Kevin,
Thanks for your help. we just asked if we could join the group on Facebook. Hopefully we will hear back soon. Thanks for your help.
JD and wife.
Kevin Weilacher replied to J. D.'s discussion 'Questions about Recent Diagnosis: Your Expertise Please!'
J.D.,
I am very sorry to hear about your wife and the TM diagnosis....Instead of going into all of your questions on here...let me recommend to you to join my group on Facebook....You are more than likely to get a more timely response and there are…
Share TM Stories
A place to share your TM story. Tell us your journey through diagnosis, treatment, and current day battles you face. This is an open group for you to get your frustrations out about TM. We learn from each other.
Bettie Imus joined Greg Sapp's group
Kimberlyn Thomas left a comment for Rachel Carlson
CONGRATULATIONS - I just read you exciting news, so happy fo you…
My diagnosis is always changing
Has anyone had their diagnosis change as much as I ? I have gone from GBS, to TM, MS, Genetic disoder, LETM, Demaylating Polyneuopathy, and Neuitis. I have never had teatment for either diagnosis. Its been two year and it all began after a flu vaccination.See More
Discussion posted by Kimberlyn Thomas
Questions about Recent Diagnosis: Your Expertise Please!
My wife has been diagnosed with Transverse Myelitis. We’ve done lots of reading online and asked our neurologist some questions. But we probably learned the most from other people’s stories. My wife suggested I post her story online to tap into the knowledge of this community.We would like to know if her diagnosis makes sense to people who have experienced TM.Here is her timeline:Thursday, January 5th: Pain in back (especially right shoulder) at 2sm. By 7am, she was struggling to walk. We made…See More
Discussion posted by J. D.
Maria r. Nelson liked Maria r. Nelson's profile
Kelli Cooper commented on Diane's blog post 'Why I'm here'
Welcome Diane. You are not alone. My 10yr old came down with it the Wednesday after Thanksgiving and I have learned so much. I still have alot of questions like I'm sure you do, but I just encourage you to ask as many…
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My diagnosis is always changing
Started by Kimberlyn Thomas in Transverse Myelitis Jan 22. 0 Replies 0 Likes
Has anyone had their diagnosis change as much as I ? I have gone from GBS, to TM, MS, Genetic disoder, LETM, Demaylating Polyneuopathy, and Neuitis. I have never had teatment for either diagnosis. Its been two year and it all began after a flu vaccination.Continue
Questions about Recent Diagnosis: Your Expertise Please!
Started by J. D. in Transverse Myelitis. Last reply by Kevin Weilacher Jan 23. 3 Replies 0 Likes
My wife has been diagnosed with Transverse Myelitis. We’ve done lots of reading online and asked our neurologist some questions. But we probably learned the most from other people’s stories. My wife suggested I post her story online to tap into the knowledge of this community.We would like to know if her diagnosis makes sense to people who have experienced TM.Here is her timeline:Thursday, January 5th: Pain in back (especially right shoulder) at 2sm. By 7am, she was struggling to walk. We made…Continue
My fingers ache sooooo bad and are hot to touch!
Started by Meiling Caperton in Transverse Myelitis Jan 10. 0 Replies 0 Likes
I have cervical transverse myelitis and it affected pretty much my whole body, I can walk wobbly now and my balance is way off but the worst part of all of it is my fingers don't move they are paralyzed still :( so there are sooooo many things I can do for myself. Lately for about a month when I lay down too long my left hand cramps so bad Ii can't ease the pain :( it takes about 30 minutes after I sit up for it to stop hurting. My right side is stuck in the open position and the left is in a…Continue
Recurrent TM
Started by Doreen Crawford in Transverse Myelitis. Last reply by Kevin Weilacher Jan 4. 1 Reply 1 Like
Hello All,I was diagnosed July 17, 2010. I am fortunate that I have only had sensory involvement in which steroids were effective with just residual parasthesias in my right hand. I just experienced a recurrence in November 2011-- my MRI showed inflammation at the same area of C-1. One week of steroids (3 days of 100mg then tapered) reduced the inflammation, symptoms are reduced-- occasional spasms in my neck, but now those are becoming less frequent. I am grateful my tests for NMO and MS have…Continue
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